To provide consulting and support services in Italian-speaking Switzerland and in Switzerland to individuals affected by the rare disease Hunter Syndrome (Mucopolysaccharidosis), particularly to those individuals residing in Switzerland who do not have a social aid organization that deals with the rare genetic disease they suffer from, as well as to their family members, and to defend their rights and interests, as well as to promote and protect their quality of life. The association also aims to promote and support clinical research and technological research in this field, as well as to raise awareness among the authorities and the public about the existence and consequences of these pathologies. The association also undertakes to promote collaboration with individuals and/or legal entities that deal with rare genetic neuromuscular diseases in our country and/or abroad. The association may undertake all necessary or useful actions to achieve its purpose. The association may deal with any business and conclude any contract directly or indirectly related to its purpose. The association is independent and non-profit.
Outbound Leads by COHAGA